May is Vasculitis Awareness month

Churg Strauss Syndrome patients urged to
support this important endeavor!

 

From the Vasculitis Foundation:

Vasculitis Awareness Month is expanding to a month-long celebration!

Please join other Vasculitis Foundation VF members, patients, family members and the vasculitis medical community around the world in raising awareness of vasculitis and the VF. We believe everyone should know about vasculitis!

How to support Vasculitis Awareness

Vasculitis Awareness is a grassroots effort - characterized by activities and events that raise awareness all over the world. Some examples are:

Distribute brochures to doctors' offices, dental offices, pharmacies, hospitals, schools, libraries and grocery stores.

Launch an awareness campaign on Face Book and Twitter.

Write, call or email your friends and tell them about vasculitis and your individual disease.

Contact your local media and ask to be interviewed about vasculitis. Explain how it is not so rare as rarely diagnosed, describe symptoms, and explain about the importance of research being conducted to discover the cause(s) of vasculitis.

Contact your local civic clubs (Kiwanis, Rotary, and Lions), churches, synagogues or temples and offer to speak to their members about your experience with vasculitis.

Coordinate a VF informational display at a health fair, festival, store, or school.

Call or send letters/emails to Talk Shows/Investigative Shows asking them to spotlight vasculitis and/or offering to share your story with their audience.

Ask your city to declare a Proclamation for Vasculitis Awareness.

Visit with your Congressional representatives when she/he is back from Washington in the home office. Start a relationship and tell your story. Explain why funding research is important to our patients.

Coordinate a fundraising event, i.e. golf tournament, walk, dinner party, garage sale, special occasion gift party, etc.

In honor of the Vasculitis Foundation celebrating its 25th anniversary this year, we have set a goal to have an awareness activity in every STATE in the United States and every COUNTRY where we have patients! PLEASE help us reach our goal.

Please contact the VF office to sign up to participate, to request fact sheets and/or to request a 2011 Vasculitis Awareness Month Handbook


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