The Churg Strauss International Support Group mailing list has been a lifesaver for people from all over the world as it provides an opportunity for those affected by CSS to share information and advice as well as offer support to the newly diagnosed. Gary and Sue Todd from the UK founded this group in 2002 and it now has over 375 members from around the world.

The following is a description of the group as found on the Yahoo message board:
"The Churg-Strauss Syndrome International Support Group mailing list aims to provide a means for patients, carers and all concerned with the disorder to share their knowledge and experience. Many of the list subscribers are patients who are only too happy to support the newly diagnosed".

To join this group, follow this link (http://health.groups.yahoo.com/group/CSSISG/)