Worldwide reference

CSSISG:

http://www.churg-strauss.com (Support group)

Local references

Germany

Contact Persons

1. Peter Zelewski peter.zelewski@t-online.de
(Spokesman of the Vaskulitis Patienten Selbshilfegruppe (VPS)
and Working Committee of the Bad Bramstedt Clinic, Lubeck)
www.vaskulitis.org (supportgroup)

Specialists

Prof. Dr. W.L. Gross
Dr. B. Hellmich
Dr. E. Reinhold-Keller
Klinik fur Innere Medizin und Klinische Immunologie
Oskar-Alexanderstr/ 26
Bad bramstedt - Lubeck
Tel. 04192/ 90-0

Other references

1. www.rheuma.uni-luebeck.de
2. www.vaskulitis.org (supportgroup)

England

Contact Persons

1. Gary Todd garytodd@blackpigs.freeserve.co.uk
(Co-ordinator of CSSISG www.churg-strauss.com )
2. June Fraser junefraser@mac.com(London area)
3. Joy Mann joy.mann@tesco.net(Hertfordshire)
4. Chris Anderson jamesanders@onetel.com (Lancashire)

Specialists

1. Dr. McHugh - Royal National Hospital for Rheumatic Diseases Bath
NHS foundation trust Upper Borough Walls
Bath, Somerset, BA 1 1RL
Tel. 01225 465941

2. Prof. Newman Taylor
Royal Brompton Hospital in London
Sydney Street, London SW3 GNP
Tel. 020-73528121

3. Dr. Roland du Bois (tel. 02073510829)
Royal Brompton Hospital in London
Sydney Street, London SW3 GNP

4. Dr Spencer Ellis
Consultant Physician & Rheumatologist
Department of Rheumatology
Lister Hospital
Coreys Mill Lane
Stevenage
Hertfordshire
SG1 4AB
Tel: 01438 314333 x4473

5. Dr Nixon Dept of Neurology, Royal Preston Hospital,
Sharoe Green Lane,
Fulwood,
Preston PR2 9HT
Tel 01772 522557
Fax 01772 523643

6. David Jayne
Consultant in Nephrology and Vasculitis
Box 118
Addenbrookes Hospital
Cambridge CB2 2QQ

7. Professor Bacon
The Department of Rheumatology,
University of Birmingham,
Edgbaston,
Birmingham B15 2TT
UNITED KINGDOM
http://www.rheuma.bham.ac.uk

8. Dr. David Carruthers
City hospital trust, NHS
Birmingham

9. Dr Anoop Chauhan
Queen Alexandra Hospital,
Portsmouth,
Hampshire.
Telephone Respiratory Centre 023 9228 6665

Scotland

Other references

Australia

Contact Persons

1. Tony Smith smithty@ix.net.au (Bathurst, Eastern Australia)
2. Pamela Grima pamelamg@dodo.com.au (Western Australia)

Specialists

Dr. John Gommans
Hawkes Bay Hospital Hastings

Other references

www.allergy.org.au

Belgium

Contact Persons

Wallon (French) speaking
1. Christophe DeClerck chris_declerck@yahoo.fr

Flemish (Dutch) speaking
1. Marian Mesker marianmesker@hotmail.com
2. Corinne van Holst kw.montana@tref.nl

Specialists

1. Dr. Walraevens - UZ-Gent

2. Dr. Pr. Serge Steinfeld
Hopital ERASME
Route de Lennick 808
Anderlecht
Bruxelles 1070
Tel. (0032) 02 5553111

Other references

twixel.com/cibforum (discussion forum)

Canada

Contact Persons

1. Naomi Andres
Vancouver, BC
604-541-72638

Specialists

Other references

The CSSA Medical Advisory Board is comprised of the world's leading experts in CSS, and all can be recommended without reservation. Although some do not take new patients, almost all of them are willing to consult with physicians who would like information about the complexities of the disease. A list of doctors on the Medical Advisory Board can be found at http://www.cssassociation.org/aboutCSSA

Denmark

Contact Persons

Specialists

Wiik, MD, Allan Department of Autoimmunology
Statens Seruminstitut
Artillerivej 5
DK-2300 Copenhagen
Denmark
0045 3268 3362

Other references

Spain

Contact Persons

Specialists

Dr. Cinta-Cid, MD, Maria Department of Internal Medicine
Hospital Clinic I Provincial
Villarroel 170
08036 Barcelona, Spain
Tel. 93 2275400

Other references

USA

Contact Persons

California

1. Reynaldo and Marylou Quintana
marylouquintana@yahoo.com
San Diego, CA


2. Angela Bridges
8948 Cypress View Way
Elk Grove, CA 95758
916-397-5933


3. Danielle Holthe
Roseville,CA
DanielleF@surewest.net
916-784-3771

Colorado
1. Micki Gillespie
CSS/1994
Denver, CO
larmic2004@comcast.net

Florida
1. Paul Tjaden
209 Hidden View Drive
Groveland, Florida 34736
703-727-3423

Massachusetts
1. Jane Dion
Montgomery, MA
JaneOnLne@aol.com

Minnesota
1.Jean Busching
9327 CO. RD. 11
Breezy Point, MN. 56472-3550
(218) 562-4528
jbusching@tds.ne

New Hampshire
1. Jack Corrado, CSS March '01
49 Spinnaker Way
Portsmouth, NH 33801
(603) 430-8408
email: jcorrado_1999@yahoo.com

North Carolina
1. Marshall Fishman
Supply, NC
mtfishman@atmc.net

Pennsylvania
Walt Kalista
Pittsburgh, PA
waltykatupj@yahoo.com
(Walt, a CSS patient in his mid-20s would be willing to communicate and provide support to any parents whose kids are dealing with CSS).

Oregon
Russ Crawley
777 Shawnee Dr. SE
Salem, Oregon 97301
573-371-1525
Veegieman@aol.com

Texas
1. Cindy Smoot
Royse City,
TX
Cindy@dibimail.com
469-721-5061
2. Billie Ford
Houston, TX
msbfford@yahoo.com

Utah
1. Dr. Laurie Culbreth
173 Ridgeway Street
Helper, UT 84526
435-820-0279

Washington, DC
1. Ann Mazzullo
Mazzullo@mcccourt.com
Washington DC

Patient Recommended Medical Professionals

1. Dr Michael Lockshin - Rheumatologist
Barbara Volcker Centre, Hospital for Special Surgery
New York, NY
212-774-2661

2. Dr. Philip Sea
Johns Hopkins (Bayview Campus)
Baltimore, MD

3. Dr. James Ryba - Rheumatologist
Medical Center in Fountain Valley
Fountain Valley, CA

3. Dr. Chester Oddis - Rheumatologist
University of Pittsburgh Medical Center
412-647-6700

3. Dr. B.J. Ferguson - ENT
University of Pittsburgh Medical Center
412-784-5570

4.Dr. Mark Provenzano - Pulmonary
UPMC Passavant
Pittsburgh, PA
412-367-5020

Other references

The CSSA Medical Advisory Board is comprised of the world's leading experts in CSS, and all can be recommended without reservation. Although some do not take new patients, almost all of them are willing to consult with physicians who would like information about the complexities of the disease. A list of doctors on the Medical Advisory Board can be found at http://www.cssassociation.org/aboutCSSA

France

Contact Persons

Christophe DeClerck chris_declerck@yahoo.fr

Specialists

Pr. Loic Guillevin, MD
Hopital Cochin, Internal Medicine
27, rue du faubourg saint-Jacques
75679 Paris, cedex 14,
France
Tel. 01 58 41 41 41

Other references

www.vascularite.com

Greece

Contact Persons

1. Marian Mesker marianmesker@hotmail.com

Specialists

1. Prof. H. Moutsopoulos (Rheumatologist-Immunologist)
Vournazou 29 (Ambelokipous)
Athens
210-6430559

2. Dimitrios Vassilopoulos, MD
Vass. Sophias Ave. 117
Athens
210-6450901

Other references

Ireland

Contact Persons

1. Eva Mullooly mulloole@gofree.indigo.ie
2. Pauline Hannon paulinehannon@eircom.net

Specialists

1. Dr. Conor Mccarthy (Rheumatologist)
Mater Private Hospital
Eccles Street, Dublin
Suite 14, 69 Eccles street, Dublin - 7
Tel. 01-8300197


2. Dr Georges Melotte
St.James's Hospital
Dublin 8,

Other references

Italy

Contact Persons

1. Cinzia Zuccarini cinstef@hotmail.com

1. Ferri, MD. Clodoveo Associate Professor
Internal Medicine and Rheumatology
University of Pisa
Italy
Department of Internal Medicine
Rheumatology Unit
Reumatologia Ospedale
S. Chiara Via Roma. 6756126
Pisa, Italy
tel. 50 558601

2. Dott. Mario Campanella
11o U.O. Nefrologia-Pescara
Ospedale Regionale di Pescara
Tel. 085.4252681
mario.campanella@tiscali.it

Other references

www.churg-strauss.org

Japan

Contact Persons

Michael Cormack mhsras@yahoo.co.uk

Specialists

1. Hashimoto, MD, Hiroshi
Juntendo University School of Medicine
2-1-1 Hongo, Bunkyo-ku
Tokyo, 113, JAPAN
w: 81338133111
fax: 81358004893
hashi@med.juntendo.ac.jpDr.


2. Professor Nomura
Kawagoe Medical center,
Saitama

Other references

Norway

Contact Persons

1. Reidun Laedre reiladre@online.no

Specialists

1.Klaus Uwe Wildhagen
Generell medisinsk poliklinikk
Armauer Hansensvei 20
Postboks 8100
4068 Stavanger


2.Dr. Koldingsnes, MD, Wenche
Department of Rheumatology
University Hospital
N-9038 Tromso

Other references

New Zealand

Contact Persons

1. Bailey Jakobi bailey_jakobi@hotmail.com (Remuera, Auckland)
2. Hazel Oats hazel_petal@xtra.co.nz

Specialists

Dr. Mark O’Carrol
Greenlane Medical Centre - Respiratory Clinic
Tel. 09 3670000

Other references

Nederland

Contact Persons

1. Marian Mesker marianmesker@hotmail.com
2. Corine van Holst kw.montana@tref.nl

Specialists

Prof. C.G.M. Kallenberg, UMCG.Groningen
Hanzeplein 132 Groningen
Tel. 050-3612712

Dr. Cohen-Tervaert, MD
University Hospital Maastricht
Dept. Clinical Immunology
Tel. 043-3884164

Other references

www.vasculitis.nl
vasculitus-nl@yahoogroups.com (supportgroup)

Sweden

Contact Persons

Specialists

Lefvert, MD. PhD. Ann Kari Professor
Karolinksa Immunological Reseach Unit
Karolinska Hospital
S-17176 Stockholm
Sweden
Tel. 8 51773084

Other references

Swizz

Contact Persons

1. Beatrice Gay trixli@tvs2net.ch

Specialists

Hauser, MD, Thomas M.
Immunology and Nephrology
University of Basel
Muehlesteig 9
CH-4102 Binningen
Switzerland
Tel. 61 4213497

Other references

Czech Republic

Contact Persons

1. Jan Pokorny cycler.chs@seznam.cz
Jan is a CSS patient and a psychologist too, he would be happy to provide support to any CSS patient dealing with psychological problems.

Specialists

1. Dr. Jirina Bartunkova
Institute of Ummonology
2nd Faculty og Medicine
Charles University
V Uvalu 84
150 06 Prague 5, Czech Republic
Tel: 420 2 2443 5960
Fax: 420 2 2443 5962

Other references